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    Home / Webinars

    Congressional Briefing: National Academies Report - Addressing Sickle Cell Disease

    10/8/2020

    Description

    Individuals with sickle cell disease (SCD) are living longer in the United States; however, barriers to receiving quality, comprehensive care for SCD remain, resulting in health care disparities and inequities. COVID-19 has further disrupted care and increased these challenges and mortality. To address these challenges and others, the National Academies of Sciences, Engineering, and Medicine (NASEM) recently released a new report entitled Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, which provides recommendations for improving health care for the approximately 100,000 people in the U.S. with SCD.
    This briefing will present an overview about
    • the current state of SCD during the pandemic;
    • a personal story of a young adult’s journey with the disease;
    • key findings and recommendations from the NASEM report on SCD;
    • and a presentation of proposed policy strategies.
    Join us to learn how you can help improve SCD care and outcomes.

    Speakers

    • Biree Andemariam, MD, Chief Medical Officer, Sickle Cell Disease Association of America, Inc., University of Connecticut Health
    • Kyle A. Smith, MS, Crescent Foundation
    • Kim Smith-Whitley, MD, Children’s Hospital of Philadelphia
    • Chancellor Donald, MD, Chair, American Society of Hematology Committee on Practice, Tulane University

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    62nd ASH Virtual Annual Meeting

    December 5-8, 2020
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    ASH Meeting on Hematologic Malignancies

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