Congressional Briefing: National Academies Report - Addressing Sickle Cell Disease
Individuals with sickle cell disease (SCD) are living longer in the United States; however, barriers to receiving quality, comprehensive care for SCD remain, resulting in health care disparities and inequities. COVID-19 has further disrupted care and increased these challenges and mortality. To address these challenges and others, the National Academies of Sciences, Engineering, and Medicine (NASEM) recently released a new report entitled Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, which provides recommendations for improving health care for the approximately 100,000 people in the U.S. with SCD. This briefing will present an overview about • the current state of SCD during the pandemic; • a personal story of a young adult’s journey with the disease; • key findings and recommendations from the NASEM report on SCD; • and a presentation of proposed policy strategies. Join us to learn how you can help improve SCD care and outcomes.
Biree Andemariam, MD, Chief Medical Officer, Sickle Cell Disease Association of America, Inc., University of Connecticut Health
Kyle A. Smith, MS, Crescent Foundation
Kim Smith-Whitley, MD, Children’s Hospital of Philadelphia
Chancellor Donald, MD, Chair, American Society of Hematology Committee on Practice, Tulane University