Congressional Briefing: National Academies Report - Addressing Sickle Cell Disease

Individuals with sickle cell disease (SCD) are living longer in the United States; however, barriers to receiving quality, comprehensive care for SCD remain, resulting in health care disparities and inequities. COVID-19 has further disrupted care and increased these challenges and mortality. To address these challenges and others, the National Academies of Sciences, Engineering, and Medicine (NASEM) recently released a new report entitled Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, which provides recommendations for improving health care for the approximately 100,000 people in the U.S. with SCD.
This briefing will present an overview about
• the current state of SCD during the pandemic;
• a personal story of a young adult’s journey with the disease;
• key findings and recommendations from the NASEM report on SCD;
• and a presentation of proposed policy strategies.
Join us to learn how you can help improve SCD care and outcomes.